Johns Hopkins Patient and Family ARVC Seminar

The Johns Hopkins ARVC Program hosts an annual conference for patients and families to learn the latest information on this rare inherited heart condition and to provide a platform for which they can meet others sharing similar stories. This conference is typically held in Baltimore, but due to the COVID-19 pandemic and University restrictions, this year's conference will be presented in an all virtual format once again.

Below is the agenda, you can register for the seminar here

All times are eastern

10:00 AM - 10:05 AM     Opening Remarks

Speaker: Hugh Calkins, MD

10:05 AM - 10:30 AM     A Year in Review

Speaker: Hugh Calkins, MD

10:30 AM - 10:45 AM     PVCs and Follow Up - Why Holters Matter

Speaker: Alessio Gasperetti, MD

10:45 AM - 11:00 AM     Heart Transplant for ARVC: A Growing but Unique Journey

Speaker: Paul Scheel, MD

11:00 AM - 11:15 AM     Improving ARVC Diagnosis Through Machine Learning

Speaker: Rick Carrick, MD

11:15 AM - 11:30 AM     Desmoplakin (DSP), Myocarditis, and ARVC

Speaker: Weijia Wang, MD

11:30 AM - 11:45 AM     Updates in ARVC Genetics

Speaker: Brittney Murray

11:45 AM - 12:00 PM     How Big-Data Population Genomics is Improving Our Understanding of the Genetics of ARVC

Speaker: Cynthia James, ScM, PhD

12:00 PM - 12:20 PM      Gene Therapy Approaches to ARVC

12:20 PM - 12:40 PM      Results from First In-Human Trial of Gene Therapy Treatment for Danon Disease

Speaker: Shilpi Epstein, MD

12:40 PM - 1:10 PM        Living Confidently with ARVC

Speaker: Sam Sears, PhD

1:15 PM - 1:45 PM           LIVE Question & Answer Session

2:00 PM - 2:45 PM           Self-Moderated Discussion Groups

2:00 PM - 2:45 PM           Transplant Talk - Sharing Stories

2:00 PM - 2:45 PM           Under 30 - Diagnosed with ARVC or at risk of developing ARVC

2:00 PM - 2:45 PM           CareGivers