Advocacy

Learn to make your patient voice count!

What to help shape U.S. legislative policies that impact our rare disease families? Learn to make a difference for yourself and others by being a SADS advocate in your community!

Partnering with EveryLife Foundation, the SADS Foundation wants to bring the patient voice to legislators representing you and your community! We want to further better access to needed medications, AEDs in public areas and raise awareness of warning signs of a SADS condition! To watch the advocacy webinar training as a SADS patient/family advocate, please fill out the form below. You can also review our one-pager HERE

*First Name:

*Last Name:

*Email Address:

Phone Number:

Address:

*City:

*State or Country:

*Condition Connection - choose all that apply:

I am affected

My child is affected

My spouse/partner is affected

Another family member is affected

I lost someone who was affected

I am a medical professional

Other/Prefer not to respond

*SADS Condition:

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Warning Signs
- Family history of unexpected, unexplained sudden death under age 40.
- Fainting or seizure during exercise, excitement or startle.
- Consistent or unusual chest pain &/or shortness of breath during exercise.

Advocacy

Learn to make your patient voice count!

Online Community

Find it Fast

Warning Signs