Heart of the Matter - Ask the Experts

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The SADS Foundation, in conjunction with the Mayo Clinic, conducted the ground-breaking program:  “The Heart of the Matter – Ask the Experts".

This innovative program featured questions regarding Long QT syndrome and other SADS conditions, with answers from some of the world experts.  Physicians, health care providers and affected families submitted their questions. The top-ranked questions were answered by a SADS physician expert via video. 

The idea was formed in the “Long QT Kids & Families” Facebook group, formed by Dan Alatorre who is personally affected by Long QT syndrome (a SADS condition).




"SADS Question of the Month AEDs 4-1-2019"

"How do you treat SADS patients with asthma?" (Posted December, 2012)




Dr. Prince Kannankeril from Vanderbilt University answers questions about CPVT.




Dr. Susan Etheridge from the University of Utah answers the question "Can you grow out of LQT?




"When is a fainting episode a concern for a SADS condition?" (Posted August, 2012)





"Is swimming a trigger for a Long QT Syndrome episode?" (posted July, 2012)



"What is the relationship between Long QT Syndrome (LQTS) and Sudden Infant Death Syndrome (SIDS)?"  (posted June, 2012)

 

"Does the drugs-to-avoid list mean you must always avoid those drugs or can you take some with a physician's guidance?" (posted June, 2012)