Supporting Families. Saving Lives.
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Friday, January 15th, 2021 we will be joined by guest expert Dr. Stacey Rizza, an infectious disease expert at the Mayo Clinic in Rochester, MN, and one of the leaders in navigating the SARS-CoV2/COVID-19 pandemic for the Mayo Clinic. She will unfold what is fact or fiction and what you need to know about the vaccine.
Join us for a New Year with Dr. Michael Ackerman. Share your 2021 resolutions with the SADS community
On November 20th, we welcome back Pediatric Psychologist Shannon Hourigan, PhD, MS, to SADS Live. Drs. Ackerman and Hourigan will discuss dealing with your emotional health when you're living with a genetic arrhythmia, coping with COVID-19 during the holiday season, and the intersection of the two!
This week we will hear from Lee Cooper, a long-time SADS advocate and Allison Cirino, a genetic counselor from Brigham and Women’s Hospital Cardiovascular Genetics Center. They will discuss with Dr. Michael Ackerman the importance of expanding your family pedigree and cascade screening. Don’t miss this Family Health History Month special episode.
Chief Medical Officer Robert Nussaum of Invitae will be visiting with Dr. Ackerman about the newest techniques in genetic testing - you won't want to miss this interesting and informative session Learn more about Invitae Dectect Program by visiting HERE
On October 30th we are joined with Anne and Kevin LeMoyne’s founders of Lovin’ Every Day Foundation. Hear about their diagnosis, how they came to SADS and what they have done in the community. Learn more about Anne and Kevin LeMoyne’sby visiting https://www.lovineveryday.org/
This week Dr. Michael Ackerman will be joined by a surprise guest from the Facebook community. Our guest has joined us for several live sessions and will share their family's story along with how the SADS Foundation has helped them.
We asked the SADS community for feedback on topics for our weekly Facebook Live Q&As, and we were excited to discuss: ICDs and Device Therapy! Watch as the SADS Foundation community asks Drs. Charlie Berul and Mike Ackerman answer your questions about ICDs and Device Therapy for SADS conditions.
Dr. Paul Thornton, Dr. Maully Shah, and Kathrine Timothy join Dr. Michael Ackerman to discuss Timothy Syndromes.
Dr. Mike Ackerman interviews a fellow SADS Scientific Advisor, Dr. Arthur Wilde of The Netherlands. They will discuss COVID-19 and SADS Conditions. Join us on facebook @SuddenArrhythmiaDeathSyndromesFoundation Read SADS Scientific Advisor, Dr. Arthur Wilde published paper below: SARS-CoV-2, COVID-19 and inherited arrhythmia syndromes