Can I take this?: The Quest For Finding OTC Medications With LQTS
When you don't have any known health conditions or allergies, finding an over-the-counter (OTC) medication to treat a minor illness is fairly simple. You can go to a pharmacy, scan the aisles until you find the right section, and grab a box that lists all the symptoms...
read moreWHEN PIGS FLY
WHEN PIGS FLY As the loud telephone ring startles me from my sleep, I inexplicably collapse to the floor and am rushed to the hospital where my heart monitor repeatedly goes crazy with bouts of cardiac arrest as I am inappropriately treated for a gamut of suspected...
read moreHow An Incidental EKG Led To A LQTS Diagnosis
For Natalie Moye, what started as a basic wellness check led to a life-changing diagnosis. She was 26, and she had just given birth to her first child, Elliot, 8 weeks earlier. She wanted to lose the baby weight, so she decided to join a weight loss and healthy...
read moreHow To Approach Online Communities For Research Calls
As a fast growing online patient support community with 5700+ members, my Facebook group “Living with an ICD” is attracting the attention of researchers. More and more, they discover the potential of social media to reach patients for medical studies. Unfortunately,...
read moreWhy I’m At Peace With Giving A Beta Blocker To My Baby
When I was pregnant with my daughter, I knew there was a chance she would have Long QT Syndrome. I have it, both of my siblings have it, and my mom has it. So do my grandma and some of her siblings. For us, Long QT Syndrome is a normal part of life. So as my husband...
read moreCamp for Children with a Heart Disease
Camp can be an exciting and formative time during kids’ summer vacations, however for many parents with children with a heart disease, it might not be considered an option. As the director of one of several camps aimed specifically at children with heart disease, I am...
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