by Kellie Moore | Mar 1, 2021 | Awareness, Connecting with others, Long QT Syndrome, Parenting
Name: Kellie Moore SADS Condition: LQTS Type 2 Tell me a little bit about your journey with pregnancy and SADS. My daughter, Sophia, will be four in April. She was born in 2017. I really didn’t have any huge concerns going in. It was just very exciting. But of...
by Kellie Moore | Sep 1, 2018 | Long QT Syndrome
On the way to high school graduation rehearsal, a classmate made an unusual confession. “I’ve never told you this,” he said. “But I’m really sorry about your heart.” Rather than feeling touched by his words, I felt a little insulted. As an optimistic 18-year-old, I...
by Kellie Moore | Aug 5, 2018 | Long QT Syndrome, Parenting
When life becomes a blur of sleepless nights, round-the-clock feedings, diaper changes, and newborn snuggles, it’s easy to put aside self-care and focus all of our energy on the new baby. While it might seem noble to sacrifice our own well-being, it’s not healthy for...
by Kellie Moore | Jun 6, 2018 | Long QT Syndrome
Kellie Moore, 30, has Long QT Syndrome Type 2. She was diagnosed during childhood, and she is currently taking a beta blocker. What’s your diagnosis story? How did you find out you have this condition? We first found out about Long QT Syndrome because my grandma had a...
by Kellie Moore | Apr 13, 2018 | Advocacy, Fundraising, Long QT Syndrome, Parenting, Timothy Syndrome
Fundraisers don’t have to be big or expensive to make a difference—they can be as simple as having people over for milk and cookies. That’s something Mary Ann Ciciarelli knows to be true. For the past seven years, her family has hosted a milk-and-cookies fundraiser in...
