by Julie Guerrero | Apr 26, 2022 | Awareness, Brugada Syndrome, Parenting, SADS Kids
Can you tell me a little bit about your family’s SADS journey – from diagnosis to where you are today? Our journey starts with my husband’s daughter, who was having cardiac symptoms. The doctors didn’t know what was going on, so they did genetic testing, and found out...
by Joelle and Holly | Apr 19, 2022 | ARVC, Awareness, Heart Failure, Heart Transplant, Sports/Exercise
When Joelle was 12, she passed out in church – and testing revealed that the culprit was ARVC. And it progressed quickly – a year after diagnosis, at 13, Joelle got an ICD to help regulate the “electrical chaos” in her heart. Joelle had been a competitive figure...
by Samantha George | Apr 4, 2022 | Awareness, Long QT Syndrome, Parenting
When I was 14, I starting blacking out and have seizure-like activity, and we saw different specialists, but they couldn’t figure out what was causing the seizures. They did a bunch of different tests – MRIs and CAT scans – which all came back normal. Because of my...
by The Jones Family | Mar 25, 2022 | Awareness, Fundraising, Grief and Loss, Long QT Syndrome, Parenting
Deby and her granddaughter SaylorMarissa and her daughter SaylorDeby and her daughter Marissa “We celebrate Graeme every day in our family by persevering and sticking together, against all odds.” Deby’s Story I was 28 when I was diagnosed with LQTS in 1989. In 2000,...
by Sam Becotte | Mar 2, 2022 | Awareness, Fundraising, Grief and Loss, Long QT Syndrome, Raising Awareness, Raising Funds
Lyla, Sonny Jude’s sister, at the pancake breakfast My son, Sonny Jude, went unresponsive (stopped breathing and his precious heart stopped beating) at six months old. His babysitter saw this and performed CPR and resuscitated him. It was then we...
by Sarah | Feb 18, 2022 | Awareness, Long QT Syndrome, Parenting
The first time I fainted, I was a freshman in high school. I got up early to go pack boxes in the food kitchen, and I hadn’t eaten breakfast, and all of the sudden the world went black. I came to right away – everyone thought I was just hypoglycemic, so I didn’t go to...
