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SADS Spotlight: Samantha

When I was 14, I starting blacking out and have seizure-like activity, and we saw different specialists, but they couldn’t figure out what was causing the seizures. They did a bunch of different tests – MRIs and CAT scans – which all came back normal. Because of my...

Day By Day: Learning to Live with LQTS

I have a life threatening heart condition called Long QT Syndrome (LQTS).  I have an implantable cardioverter-defibrillator (ICD), a small electronic device implanted in my chest, under the muscle just below the collarbone. Its main function is to prevent sudden death...