CRISPR-Cas9
“This possibly represents the greatest discovery of the century. With this technology, we could end suffering and disease for billions of people.” Stephen Heitner, M.D., a cardiologist at OHSU in Portland, Oregon, was a member of the research team who showed it is...
read moreDon’t forget to live
I very often hear people tell others to "live like you're dying" but I think we can all agree that is not great advice. I understand the sentiment: don't wait to do the things that matter to you or whatever. Here's the thing though, the majority of people are scared...
read moreNerve Pain Story
After a few years of my initial implant of my ICD, I started to have pain in my incision. The pain started out as mild and only occur occasionally. After my first replacement in 2004, the pain started to get more moderate and it occur more frequently but I did not...
read moreBats
Twinkle, twinkle little bat...... When I was first diagnosed with LQTS, my family found the stories on the C.A.R.E Foundation website. One in particular- "How to live to be 102 with Long QT"- made an impact on me and my family. Reading a story of someone who lived a...
read moreOur Journey of Uncertainty and Hope
Azariah getting an EKG Our Family Our precious Azariah My name is Angela and I am married with two children ages 2-1/2 and 6 months. Our journey through serious medical uncertainty started when I got pregnant with my 2-1/2 year old son, Azariah. From the onset of my...
read moreThe Trolls Taught Me A Lesson
The trolls used the night from August 28th to August 29th 2014 well. When I - the founder and administrator of the Living with an ICD Facebook Support Group- was sleeping peacefully, one of the troublemakers wrote a short post about Implantable...
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