by Jon | Dec 20, 2017 | ICD, Online Patient Communities, Research
As a fast growing online patient support community with 5700+ members, my Facebook group “Living with an ICD” is attracting the attention of researchers. More and more, they discover the potential of social media to reach patients for medical studies. Unfortunately,...
by Jon | Aug 26, 2017 | ICD, Online Patient Communities, Support Groups
The trolls used the night from August 28th to August 29th 2014 well. When I – the founder and administrator of the Living with an ICD Facebook Support Group- was sleeping peacefully, one of the troublemakers wrote a short post about Implantable...
