SADS Spotlight: Kristie Lindblom
Kristie Lindblom, 38, has Long QT Syndrome Type 2. She was diagnosed in 1999 at 19 years old. Her treatment includes a beta blocker, spironolactone, and an ICD. How/when were you diagnosed? I was diagnosed during my freshman year of college. I had been passing out...
read moreSADS Spotlight: Kellie Moore
Kellie Moore, 30, has Long QT Syndrome Type 2. She was diagnosed during childhood, and she is currently taking a beta blocker. What’s your diagnosis story? How did you find out you have this condition? We first found out about Long QT Syndrome because my grandma had a...
read moreFamily Raises Thousands of Dollars with Milk and Cookies
Fundraisers don’t have to be big or expensive to make a difference—they can be as simple as having people over for milk and cookies. That’s something Mary Ann Ciciarelli knows to be true. For the past seven years, her family has hosted a milk-and-cookies fundraiser in...
read moreTales from the Big Red box
Every 10 years the American College of Cardiology publishes a large document about athletic eligibility for people with heart issues. These guidelines are written at the Bethesda Conference. The last one was in 2015, and the one previous to that was in 2005. This...
read moreBroken Hearts
My heart breaks every time that I hear of a child dying suddenly from an undetected heart condition. How does one recover from knowing that if a diagnosis was made, their child may be with them today? I don’t have that answer, but unbelievably found myself...
read moreFollowing Mom’s Example: Transmitting Advocacy Skills To The Next Generation
Note from SADS Channel: we recently posed the question of 'how does your family handle deciding if meds are ok to take?' to several LQTS families. Their answers can be found here. This is Kat's answer, which we thought needed to be its own post! I remember...
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