TAKE YOUR LIFE BACK!: Chronic Medical Conditions and School
Being “sidelined” from chronic medical condition symptoms can be both overwhelming and depressing. Though the comfort zone of home will inevitably lure us from school toward the “path of least resistance” on those rough days, unfortunately, the more you miss school,...
read morePostpartum Self-Care Tips For Women With LQTS
When life becomes a blur of sleepless nights, round-the-clock feedings, diaper changes, and newborn snuggles, it’s easy to put aside self-care and focus all of our energy on the new baby. While it might seem noble to sacrifice our own well-being, it’s not healthy for...
read moreMagnets and Airports: Should ICD Patients Be Afraid?
Editor's Note: This post is also on HCM Beat, a great resource for topics related to Hypertrophic Cardiomyopathy. When cardiac patients receive a pacemaker or defibrillator, they often have questions about their new “friend.” They wonder if this new device has...
read moreTen Signs You Might be Getting Over Your Cardiac Arrest
So, you’ve had a sudden cardiac arrest. For you and many of us, this marks the beginning of long-term medical interventions and therapies designed to diagnose and treat the underlying cause or causes of this traumatic heart-stopping event. But while the family...
read moreSADS Spotlight: Shannon Cron
Shannon Cron, 38, has Long QT Syndrome Type 2. She was diagnosed in 2017. She is treated with a beta blocker. How/when were you diagnosed? I was diagnosed after the death of my 14 year old daughter in August 2016 who was the first in the family to be...
read moreSo you’re going to the Mayo Clinic…
Seeing the doctor is always stressful. It's even more so when you're from out of state (like me) or even out of country. It can be very overwhelming. I admin a group and we get a lot of questions from people asking what it's like, where to stay, where to eat, what you...
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