How does a SADS condition impact you? Please tell us about your own personal experience or how it has impacted someone you are close to.
8 years ago, my 23 year old sister died unexpectedly. After 2 autopsys that came back undetermined, our family researched sudden death in young adults and came across long-qt. During reading the symptoms of long-qt, I noticed that I had signs of it so I got tested and found out indeed I do have it. My mom and 12 year old sin also have it, so it would make sense that my sister had it too but we just didn't know until it was too late.

Why do you volunteer for the SADS Foundation?
To spread awareness.

Please tell us a little about what kind of volunteer activities you do for the SADS Foundation. (i.e. participation in SADS awareness campaigns, responding to advocacy action alerts, attending/organizing SADS events in your community, etc.)
We go around to the schools, churches, & athletic clubs to hang flyers and tell about long-qt and what it is, the signs of it and how to get tested. If we can save 1 life, our mission is complete.

What is your favorite part about volunteering for the SADS Foundation?
Helping others understand more about their condition and hopefully saving lives.

Do you have any advice or final thoughts for others who might be interested in getting more involved with the SADS Foundation?
Do it!!!! It will make you feel so great knowing you're helping others.