How does a SADS condition impact you? Please tell us about your own personal experience or how it has impacted someone you are close to.
I had a complete cardiac arrest in 1997 and several major episodes since then. I had no idea that I had Long QT Syndrome until my arrest, even after having been symptomatic and hospitalized. I have had an IED since 1997 but deal with almost daily episodes of irregular heart beats. Living alone compounds the 'nervous' factor.

Why do you volunteer for the SADS Foundation?
To educate as many people as I can. If I had known prior to my cardiac arrest that there was even such as condition as Long QT it may have significantly impacted my life and health.

Please tell us a little about what kind of volunteer activities you do for the SADS Foundation. (i.e. participation in SADS awareness campaigns, responding to advocacy action alerts, attending/organizing SADS events in your community, etc.):
Mostly circulating your literature and speaking to as many people as possible. I think that I can inform just one person who may be at risk that is a win win.

What is your favorite part about volunteering for the SADS Foundation?
When I speak to someone who has had symptoms and may be at risk and I know they have the opportunity to do something about it and potentially avoid a disaster.

Do you have any advice or final thoughts for others who might be interested in getting more involved with the SADS Foundation?
I have dodged a bullet many times in my life not only from Long QT but from cancer as well. I consider anything I can give back is a way of thanking God that I am still here today.

Do you have any additional comments?
Just that I wish I could do more.