Enrolling Research Studies

• NEW!! CPVT Research Studies
• NEW!! ARVC Drug Development study

• Link My Heart - Brugada Project
• ARVD/C Research Studies
• Study of People with Unexpected SADS Genetic Results
• Understanding Family Communication in East Asian Individuals
• Long QT & Pregnancy - Mobile Fetal Magnetocardiography
  
• CPVT Registry and Biobank
• Cardiac Channelopathy Novel Gene Discovery Program
• Multicenter, International study on Pregnancy and LQTS
• Sudden Death in the Youth (SDY) Registry
• Prospective Identification of Long QT Syndrome in Fetal Life

Completed Research Studies

• LIVE-LQTS and LIVE HCM Exercise Studies CLOSED
• NIH-Funded Clinical Trial for CPVT CLOSED
  
• Evaluating Women's Experiences With ICDs:  Check out the results!
• ICD Sports Registry Needs Athletes Study closed, results pending
• LQTS Pregnancy Research Study: Check out the results!
  
• Measuring the Psychological Effects of Growing Up at Risk for LQTS:  Check out the results!
• ICD Patients: Benefits of Internet Resources:  Study closed, results pending
• LQTS Emergency Room Experiences Study:  Check out the results!
• Physician decision making with children and adolescents diagnosed with LQTS:  Study closed, results pending
• SADS Insurance Study:  See an abstract of the results here!