Supporting Families. Saving Lives.
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Parents are welcome to visit the kids’ rooms and attend their lectures.
9:00 Registration SADS Staff and Volunteers
11:00 Lunch (on your own)
12:00 Registration SADS Staff and Volunteers
1:00 Icebreakers and Introductions
1:30 Make Your Own SADS T-Shirt Activity/Healing Wall Stories/Other Activities
4:50 Motivational Speech Justin Park and Dwayne Polee
5:30 Buses leave for Mission Bay “Take Steps to Stop SADS” Conference Attendees
7:00 Poolside Reception at hotel Heavy Hors d’Oeuvres
7:00 Registration/Breakfast in Room
YOUTH (8-12yo)
TEENS (13-19yo)
8:30 How the Heart Works
8:30 Athletics/Can I Still Play Sports?
9:15 10” Break
9:00 Treatment and Beta Blockers
9:25 I Have SADS: How to Tell Others
9:30 Prepare Questions
9:45 10” Break
9:45 No Parents Allowed (Ask an MD)
9:55 Can I Still Play Sports?
10:15 Who/How to Tell
10:15 10” Break
10:45 How the Heart Works
10:25 Why Do I Need a Beta Blocker?
11:30 Genetics and your Pedigree
10:45 Break & Snacks
10:55 Genetics and your Pedigree
11:25 Work on Healing Wall/T-shirts
Everyone Together
12:00 Lunch in Room
12:30 AED use/CPR Hands Only Activity/Caring for your AED Project Heartbeat
1:30 Your ICD 1:30 Non-Affected Sibling Group 2:00 Guidebook for Living Well with a SADS Diagnosis 3:00 Youth and Teens Panel 2:45 Healing Wall and Video Production/Other Activities
4:15 Put up Healing Wall Stories
4:45 Healing Wall Ceremony SADS Staff and Conference Attendees
5:30 Dinner on your own
8:30 Breakfast in Room
9:00 New Technology
9:30 Create posters and Prepare for Speak-Out Activity
10:15 Break and Snack
11:00 Fundraising…..How to Do "Take Steps to Stop SADS" at home
11:40 Teens and Youth Speak Out
** - Speakers and Activity Leaders are currently being determined. If you are interested in being involved or volunteering your time to help with the Kids and Teens Tracks, please contact Lynn@sads.org.