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11th Annual International
SADS Foundation Conference

October 26-28, 2018
Ann Arbor, Michigan

FAMILY PROGRAM

Friday, October 26th

11:30	Registration
12:00	Scientific Posters & Lunch

12:45

Youth Program (ages 8-18) Begins: Parents must sign in 8-12 y/o and leave cell phone numbers

1:00 Adult Program Begins

1:00	SADS Foundation Presentation/Plan for Weekend/TSSS	Alice Lara
1:20	SADS 101 Presentation	Brynn Dechert-Crooks, RN, CPNP
1:50	Heart Safe School Accreditation/Project ADAM	Gwen Fosse, RN, BSN
2:10	Advocating for You and Your Family	Katy Bos, MS, RN, CNS
2:25	What does participating in research mean?/SADS Research Committee	Martijn Bos, MD, PhD
2:45	BREAK
3:45	Disease Breakout Groups* (*specific groups may change based on attendance)

	1- LQTS	4- ARVD
	2- Brugada	5- Timothy Syndrome
	3- CPVT	6- Misc

4:45

Groups end and everyone goes to the shuttles.

5:00

Special Event: Take Steps to Stop SADS at the U ofM Stadium ("The Big House")

Saturday, October 27th

7:30	Registration/Breakfast	Buffet Style
8:15	Welcome Message & Introduction	Dr. Bradley & Dr. Ackerman
	Long QT Syndrome (channelopathies): Errors to Avoid	Peter Schwartz, MD
	Expanding and Overlapping Phenotypes	Dominic Abrams, MD
	Living Well With SADS Conditions	Jen White, MD &
9:30	Break	Light Refreshments
	Keeping Yourself Safe When Exercising	Ian Law, MD
	Your Personal Risk Profile	Expert discussions TBD
	Cutting Edge Research	Expert discussions TBD
	Fireside Chat	Question & Answer Period

12:30       Lunch and Volunteer Awards

1:30-2:20 Young ICD Program - adults and kids with ICD's

Breakout Group One: 1:35 to 2:20
1) SADS after hours (Medication Management/ Parents of Teens)     Susan Etheridge, MD
2) Collaborating with your School, Brenda Henne
3) CPR/AED Outreach in the Community Richard Lamphier, RN
4) Resiliency: Living Your Best Life, Shannon Hourigan

Breakout Group Two: 2:30 to 3:20
1) Collaborating with your School, Brenda Henne
2) Resiliency: Living Your Best Life, Shannon Hourigan
3) Genetic Testing: Benefits and Limitations, TBD
5) Dealing with Grief

3:20    Break

Breakout Group Three: 3:30 to 4:20
      Disease Breakout Groups* (*specific groups may change based on attendance)
      1- LQTS
      2- Brugada
      3- CPVT
      4- ARVC
      6- Misc

4:30	Mindfullness Exercise
4:45	Healing Wall Ceremony
5:30	Dinner on your own

Sunday, October 28th

8:30	Breakfast & Coffee	Buffet Style
9:00	Pregnancy & Starting a Family
10:00	Your Family Pedigree and Family Planning Options (PGD)	Patty Arscott, GC
10:25	Break
10:45	Raising a Kid with SADS	Katy Bos, Jen White, Gwen Fosse
11:15	SADS Perspectives/History
11:45	Youth and Teens Present
12:10	Adjourn

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