SADS - Past SADS Conferences

Supporting Families.
Saving Lives.

Sign-up for our Enewsletter here.

Home | SADS International Conference | Past SADS Conferences | 2013 SADS Conference Agenda

7th International SADS Foundation Conference:

Preventing Unexpected Sudden Death in the Young

agenda

Friday, Nov 1 - CME Sessions

Location: Aladdin Shrine Event and Conference Center, 3850 Stelzer Rd., Columbus, Ohio 43219

7:30 Registration

8:15 Welcome and Introduction

Robert Campbell, MD & Naomi Kertesz, MD

8:25 Introduction to SCD in the Young: The Scope of the Problem
Peter Aziz, MD

8:45 Overview of Conditions Causing SCD in the Young – Channelopathies

Elizabeth Kaufman, MD

9:25 Overview of Conditions Causing SCD in the Young – Cardiomyopathies

Jeff Towbin, MD

10:05 State of Pre- and Post-Mortem Genetic Testing for Sudden Death
Predisposing Heart Diseases

Michael Ackerman, MD

10:50 Break

11:05 Fetal Channelopathies
Bettina F. Cuneo, MD

11:25 The Role of the Genetic Counselor
Amy Sturm, CGC

11:45 SADS Safe Schools
Bob Williams, RN

12:00 Lunch

12:45 Sudden Death in Athletes: Is Prevention Possible?
An Interactive Check List

Robert Campbell, MD & Stuart Berger, MD

1:25 Vanilla Faint vs. SCD Warning Sign
Michael Ackerman, MD

2:10 Screening – Why Isn’t It Universal? – What Would It Take
To Push the Boundary?

Jonathan Kaltman, MD

2:50 Break

3:05 Role of First Responders in a SCD Event – EMS, Athletic Trainers,
School Nurses, etc.

Darrell Wallace

3:30 A Case Study of Family-Centered Care
Naomi Kertesz, MD

4:00 A Patient’s Perspective
Clint Birkholz

4:30 Adjourn

Friday, Nov. 1 - Patient / Family Sessions

Location: Hilton Columbus/Polaris, 8700 Lyra Dr, Columbus, OH 43240

10:00 am Registration

3:00 pm SADS 101

Susan P. Etheridge, MD

4:00 SADS Ambassador training

6:00 Optional Dinner/activity

Saturday

7:00 Registration

8:00 Welcome

Alice Lara, RN Executive Director/CEO SADS Foundation

8:10 Understanding Your SADS Condition

Naomi J. Kertesz, MD

8:50 Latest Treatment Strategies (includes S-ICD)

Michael J. Ackerman, MD, PhD

9:30 Break

9:45 Athletics, Roller Coasters and Swimming

Stuart Berger, MD

10:25 Should we screen everyone? How can this be done?

Jonathan R. Kaltman, M.D.

11:05 Parenting Your Child with SADS as They Grow

Susan P. Etheridge, MD

11:45 Volunteer Awards

Heart Safe Schools Presentation

12:15 Lunch: Question and Answer Physician Panel

1:45 Break

Breakout Groups (choose 2)

2:00-3:00 Round 1

3:15-4:15 Round 2

ICD Information and Discussion (Dr. Doug Pope, pediatrician)

Newly Diagnosed Families (Sharon Lentino)

School Issues - IEPs and 504s (Erin Clark)

Insurance and GINA (Amy Sturm, MS, CGC & Kate Lynch, MS, CGC)

Pregnancy and SADS (Bettina F. Cuneo, MD)

Grief (TBD)

4:30 Healing Wall Ceremony

5:00 Mingle Time. Dinner on your own

7:00 Fairfield Celebration - kids and speakers invited!

Sunday

7:30 Breakfast

8:00 Beta Blockers, and Drugs to Avoid- How to Handle
Medications With a SADS Condition

Susan Etheridge, MD

8:45 Genetics and the Family

Amy Sturm, MS, CGC

9:30 Personal Risk Profile

Peter Aziz, MD

10:15 Break

10:30 Genetics: What Explains the Rest of LQTS?

Michael J. Ackerman, MD, PhD

11:15 Kids Speak Up! (Panel)

12:00 Adjourn

SADSConnect
Kids Track(ages 9 -18 years old)

The 2013 International SADS Foundation Conference will give young people from around the globe a chance to make connections during SADS Connect. Friendships from the last conference will be rekindled and new friendships will begin! SADS Connect, led by young people with SADS, will include discussions and informative sessions on the topics that interest kids. Join us for all three days, or just for Saturday and Sunday.

Friday

3-5:00 Activities for kids: T-shirt decorating, Create a Living and Thriving piece of art

3:00 CPR and AED training

Saturday

Youth (8-12)

9:00 How the heart works

Dr. Pamela Ro

9:30 Genetics

Amy Sturm, K. Lynch, H. MacLeod

Break/Games

10:30 Snack

11:00 Who should know about your condition? And how to tell them!

Dr. Michael Ackerman

11:30 Athletics

Dr. Charlie Berul

12:00 Lunch

Break

1:00 Growing up with SADS

Dr. Peter Aziz

Teen (13-19)

9:00 LQTS, CPVT, BRS, in detail

Dr. Susan Etheridge

9:30 Taking your beta blocker

Dr. Pamela Ro

10:00 Genetics

A. Sturm, K. Lynch, H. MacLeod

10:30 Snack

10:45 Athletics

Dr. Charlie Berul

11:30 Growing up with SADS

Dr. Peter Aziz

12:00 Lunch

Break

1:00 Parents not allowed (All the questions you have been afraid to ask).

Dr. Michael Ackerman

Kids and Teens groups merge

1:40 Talk with the Youth Advisors
Eliana London, Brittan Sutphin, Michael Clark

2:15-4:00 Video Project- What Advice would I give to another kid like me?

Sunday (Kids and teens together)

7:30-8:00 Breakfast

8:00 How to plan a kid friendly fundraiser!
Jan Murphy

8:45-10:30 Movie – We Bought a Zoo

10:30-11:15 Create posters to present to the adult conference.
Anne Maurer

11:15 Present posters and videos from Saturday to the adult conference.

Back to SADS 7th International Conference.

Online Community
Find it Fast
Warning Signs
- Family history of unexpected, unexplained sudden death under age 40.
- Fainting or seizure during exercise, excitement or startle.
- Consistent or unusual chest pain &/or shortness of breath during exercise.

7th International SADS Foundation Conference: Preventing Unexpected Sudden Death in the Young

Friday, Nov 1 - CME Sessions

Friday, Nov. 1 - Patient / Family Sessions

Saturday

Sunday

SADSConnect Kids Track(ages 9 -18 years old)

Friday

Saturday

Youth (8-12)

Teen (13-19)

Sunday (Kids and teens together)

Online Community

Find it Fast

Warning Signs

7th International SADS Foundation Conference:

Preventing Unexpected Sudden Death in the Young

SADSConnect
Kids Track(ages 9 -18 years old)