SCA Survivor Stories: Lindsay Casey
On January 13th, 2019, I woke up to a seemingly normal Sunday. I was a healthy, 30 year old mother sharing breakfast with my 11 month old son and my husband, Scott. When I went to get our son ready for church, Scott had a feeling that he needed to come check on us....
read moreSCA Survivor: Daiana
The first time I had my cardiac arrest was February 13th, 2016. My cardiac arrest occurred when I was at baseball practice and I told my coach I did not feel right and was having a lot of pain. I thought it was just muscle pain, but I ignored it and...
read moreSADS Spotlight: Karly Gonthier
Name: Karly Gonthier Age: 13 Which SADS condition do you have? CPVT When were you diagnosed? June, 2019 How are you treated? (Beta blocker, ICD, etc.) Beta Blocker, calcium channel blocker Personal Questions How/when were you diagnosed? The day after my 13th...
read moreSADS Spotlight: Cian Bennett
Name: Cian Bennett Age: 13 Diagnosis: Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT) Age of Diagnosis: 13 What led to your diagnosis? I had a fainting episode at home and my pediatrician sent me to a cardiologist. My first...
read moreJessica Robinson and her story of LQTS
My name is Jessica, I am 22 years old and I have LQTS. Throughout my childhood and adolescence, I was involved in many activities, including cheerleading, softball, and my high school’s marching band. While these activities were fun, they caused me to suffer from...
read moreSADS Spotlight: Ayden
Name: Ayden Age: 13 Diagnosis: Long QT type 1; diagnosed at age 12 I was really sick and dehydrated my mom took me to the doctor and they sent me to the ER to get IV fluids. The doctor did an ECG to see if she could give me some medicine to stop puking and noticed an...
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