SADS Spotlight: Cynthia
Name: Cynthia Age: 58 years old Which SADS condition do you have? Type 1 LQT When were you diagnosed? Since 2008, over 10 years How are you treated? Toprol How/ when were you diagnosed? My diagnosis began through a routine primary care visit that discovered it through...
read moreSADS Spotlight: Amy
When something unusual came up on Amy’s ECG in 2019, she was anxious about what could be wrong. She was having panic attacks and feeling very low, and “not knowing what was wrong made [it] worse.” Amy waited 11 long months for her genetic test to come back, which...
read moreMy Long QT Story- A Journey
I was diagnosed with Long QT syndrome in July 2001, I was 23 years old. I decided to share my story in hopes that it may help someone in the future diagnosed with this same condition. When I was first diagnosed there was a girl my age that was also a...
read moreSCA Stories: Allyson Koorhan
In October of last year, I had just arrived in Boise, ID. I work for an airline and was gearing up for two weeks of business travel, which would end off with my husband joining me in South Korea. Just a few hours into the trip, I wasn’t feeling well and someone who...
read moreSCA Stories: Story of “H”
My elderly next-door neighbor, “H”, finally put a timer on his living room lamp so if he was not home the house would not be dark. Unfortunately, he plugged it into an electrical outlet that was switched by a wall switch, and he often inadvertently turned that switch...
read moreSCA Survivor Stories: Sue Morris
Sue thanking her hero's at McCall Fire and Police Department My husband and I were up at our cabin in McCall, ID on August 7, 2020. My husband, Steve, had just come inside after working in the yard and I was apparently making toast in the kitchen when I told him I...
read more