SADS Spotlight: Nicholas
Hi! My name is Nicholas Arruda. I am 15 years old and I am from Johnston, Rhode Island. I live with my dad, Raymond and my mom, Julie. I have a 13 year old sister named Emily and a one year old Yorkshire Terrier named Chloe. I have CPVT (Catecholaminergic Polymorphic...
read moreSADS Spotlight: Dave
Name: Dave Whelan Age: 57 When was your SCA? Feb 10, 2012Which SADS condition do you have? Brugada Syndrome How are you treated? ICD and regular cardiology follow up Can you tell us about your SCA? My SCA occurred while working on a remote mine site in the...
read moreSADS Spotlight: Heather
Name: Heather Whitehurst Age: 36When was your SCA? September 26, 2015 Which SADS condition do you have? LQTS How are you treated? Beta blocker, ICD, paced to not go below 60bpm to help prevent arrhythmia as lower heart rates are a known trigger for me, avoiding meds...
read moreSADS Spotlight: Lila
Name: Lila Wolfram Age: 4When was your SCA? October 2015 (8 months old)Which SADS condition do you have? Idiopathic Ventricular TachycardiaHow are you treated? Lila has a Medtronic Evera ICD. She had a left side sympathetic denervation (LCSD) performed at 10 months...
read moreSADS Spotlight: Lisa
Name: Lisa Paglia Age: 52Which SADS condition do you have? LQT2 When were you diagnosed? 2 years After SCA in 1985 How are you treated? ICD How/when were you diagnosed? I had SCA at 17. Treated incorrectly for years, then appropriately got ICD. I learned my dad,...
read moreSADS Spotlight: Beth
Name: Beth RoyAge: 58What SADS Condition do you have? LQT1 When were you diagnosed? 2016 How are you treated? Nadolol (beta blocker) How were you diagnosed?I was diagnosed with AFIB and prescribed amiodarone. While gardening, attending a picnic or just brushing my...
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