SADS Spotlight Tisha
Name: Tisha M. Age: 36 y/o Which SADS condition do you have? Brugada Syndrome When were you diagnosed? 12/27/19 How are you treated? (Beta blocker, ICD, etc.) ICD How/when were you diagnosed? I went to Urgent Care on 12/27/19 with complaints...
read moreSADS Spotlight: Jaclyn
Name: Jaclyn Kernion Age: 38Which SADS condition do you have? LQTS1How are you treated? Treated with beta blockers from age 14 and AICD implant at age 24 (on my 4th device currently) When were you diagnosed? I was CORRECTLY diagnosed after 9 yrs of fainting and...
read moreMy story of Brugada Syndrome
Sissy Sullins living and thriving with Brugada My name is Sissy. I was diagnosed with Brugada Syndrome at age 39. I am now 60 years old. I will begin my story with my daddy. My daddy was very healthy all through his youth. All that anyone could ever remember...
read moreAn Altered Path
Hi! My name is Holly Mulder. I am 29 years old and I have CPVT. I live in Charlotte, NC with my husband and English Bulldog, Oliver. Oliver When I was 22, I started training for my first triathlon. A few years later, I had completed over 20 short...
read moreSADS Spotlight: Cole
Name: Christian "Cole" InmanAge: 14When was your SCA? May 13, 2016/Sept 17, 2018Which SADS condition do you have? CPVTHow are you treated? Nadolol x2 daily, flecainide x2 daily Can you tell us about your SCA? 1st time I was on a fair ride called the zipper. No...
read moreSADS Spotlight: Kiara
I am 27 years old and currently living with a SADS condition (Long QT Syndrome). I am always happy to share my story as it sheds light to the importance and necessity of bystander CPR along with the use of an AED. In 2007 I was 16 years old, running the mile at...
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