Mona: My Journey with LQTS and Cancer
Mona as a firefighter/ paramedic in 1999Mona running the Phoenix Rock-N-Roll Marathon in 2005Mona post double mastectomy surgery In 2003 I was a very physically fit female Firefighter/Paramedic who was running full Marathons. I was 35 years old, a 14-year veteran of...
read moreAdvancing Care: Babett Horn
Joriale Horn Can you tell me a little bit about your family’s SADS journey – from diagnosis to where you are today? Our oldest daughter, Jori, was 27 and at work when she fell straight back, and was gone. Her office was a chiropractor’s, and Dr. Angela Tarjick, a...
read moreIn Memory of Ryan Matthew Coleman
Donate Here #24ForRy On Christmas of 2016, my brother Ryan had passed away in his sleep. At 24 years old, he was a young, healthy, and motivated individual who was just getting ready to take hold of his independent life. His brilliance and work ethic had led him...
read moreAdvancing Care: Madison Chesser
Can you tell me a little bit about your family’s SADS journey? When I was little, we knew something was wrong, but we didn’t know what it was. At eight, I was diagnosed with LQTS. At 10, I had a cardiac arrest jumping over a fence. After that, my mom has been really...
read moreAdvancing Care: Kennedy Cooper
Could you talk a little bit about your family’s SADS journey? My story begins on June 11, 2001, when my mom had a Sudden Cardiac Arrest. And unfortunately, she passed away. When you’re six years old, and you lose a parent unexpectedly, there are so many unanswered...
read moreSusan Cappello: A Genetic Journey
The Cappello family Can you tell me a little bit about your family’s SADS journey? This all started in 1980, on the night of Easter Sunday. My family spent a full day with my oldest brother, and then he went to bed, and died suddenly in his sleep. The autopsy didn’t...
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