SADS Spotlight: Tania
Name: Tania Cselka Age: 53 Which SADS condition do you have? Long QT Syndrome How are you treated? Beta Blockers & ICD How/when were you diagnosed? It all started when my husband woke during the night & found me not breathing. He resuscitated me, called an...
read moreSADS Spotlight: Karin
Name: Karin Blåder, from Sweden Age: 33 Which SADS condition do you have? CPVT How are you treated? (Beta blocker, ICD, etc.) Beta blocker (Inderal) and "Tambocor" How/when were you diagnosed? I was diagnosed in the summer of 2019. I passed out at the gym while I was...
read moreJoey’s Story of LQTS Type 2
Joey at golf camp through Children's Heart Association in Cincinnati. When my son, Joey, was six years old, he was diagnosed with Long QT Syndrome Type 2. The day he was diagnosed was the hardest day of my life but I want to tell our story in the hopes that my...
read moreSADS Spotlight: Danielle
Name: Danielle Age: 38 Which SADS condition do you have? CPVT When were you diagnosed? Oct 2017, after 20 + yrs of misdiagnosis How are you treated? (Beta blocker, ICD, etc.) ICD placed in November 2017, nadolol and flecanide How/when were you diagnosed? I had a...
read moreSADS Spotlight: Kristin
Kristin's daughter the day she wore her first holter monitor. Name: Kristin Ristine Age: 34 Which SADS condition do you have? Long QT Syndrome Type 1 How are you treated? On beta blockers How/when were you diagnosed? My mom was diagnosed while at the hospital for...
read moreWill’s Story of Brugada Syndrome
Will was 6 years old when he first experienced a fainting episode. He was walking up the hill with his dad & sister one day from school when he fainted. We couldn’t tell if the kids were making it up & playing a joke on dad while I was at work. The next...
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