by Michaela Hetzler | Jun 9, 2021 | Awareness, ICD, Long QT Syndrome, SADS Spotlight, Sports/Exercise
At the age of 15 years old, I was a three season athlete in high school: soccer, basketball, and track and field. They were a huge part of how I defined myself – I loved sports. I was in a track and field hurdle event, got dizzy at the finish line, and almost passed...
by Brooke | Apr 12, 2021 | Advocacy, ICD, Long QT Syndrome, Sports/Exercise
Growing up I suffered from frequent fainting spells and would talk about my heart “feeling funny” while playing competitive sports. I was a happy and healthy kid who didn’t complain much, so my mom immediately took me to a cardiologist when I first mentioned this. A...
by Genevie Echols | Mar 17, 2021 | Awareness, Connecting with others, ICD, Long QT Syndrome, Managing Multiple Diagnoses
This is a photo of my girls and I when I was asked to speak at a fundraiser for a gala. I spoke on some of my patient experience. The money raised went to help build a hybrid cath lab to perform lead extractions safely. What SADS condition do you have, and when...
by Carla Oxtoby | Nov 19, 2020 | Awareness, Connecting with others, ICD, Long QT Syndrome, Parenting
I was diagnosed with Long QT syndrome in July 2001, I was 23 years old. I decided to share my story in hopes that it may help someone in the future diagnosed with this same condition. When I was first diagnosed there was a girl my age that was also a...
by Allyson Koorhan | Oct 29, 2020 | Awareness, ICD, Long QT Syndrome, SCA Awareness, SCA Survivor, Sudden Cardiac Arrest
In October of last year, I had just arrived in Boise, ID. I work for an airline and was gearing up for two weeks of business travel, which would end off with my husband joining me in South Korea. Just a few hours into the trip, I wasn’t feeling well and someone who...
by Sue Morris | Oct 12, 2020 | Awareness, CPR, CPR and AED Awareness Week, Heart Hero, ICD, Long QT Syndrome, SCA Awareness, SCA Survivor, Sudden Cardiac Arrest
Sue thanking her hero’s at McCall Fire and Police Department My husband and I were up at our cabin in McCall, ID on August 7, 2020. My husband, Steve, had just come inside after working in the yard and I was apparently making toast in the kitchen when I told...
