by Tisha | Jan 30, 2020 | Advocacy, Brugada Syndrome, Connecting with others, Heart Hero, ICD, Parenting, Rare Disease, SADS Spotlight, Sports/Exercise
Name: Tisha M. Age: 36 y/o Which SADS condition do you have? Brugada Syndrome When were you diagnosed? 12/27/19 How are you treated? (Beta blocker, ICD, etc.) ICD How/when were you diagnosed? I went to Urgent Care on 12/27/19 with complaints...
by Jaclyn Kernion | Jan 13, 2020 | Advocacy, Awareness, ICD, Long QT Syndrome, SADS Spotlight, Support Groups
Name: Jaclyn Kernion Age: 38Which SADS condition do you have? LQTS1How are you treated? Treated with beta blockers from age 14 and AICD implant at age 24 (on my 4th device currently) When were you diagnosed? I was CORRECTLY diagnosed after 9 yrs of fainting and...
by Kiara Landin | Oct 24, 2019 | Advocacy, AEDs, CPR, Long QT Syndrome, SADS Spotlight, Sudden Cardiac Arrest
I am 27 years old and currently living with a SADS condition (Long QT Syndrome). I am always happy to share my story as it sheds light to the importance and necessity of bystander CPR along with the use of an AED. In 2007 I was 16 years old, running the mile at...
by Jasmine Wylie | Sep 13, 2019 | Advocacy, AEDs, Conference, CPR, SADS Spotlight, Schools, Sports/Exercise, Sudden Cardiac Arrest
Name: Richard LamphierLocation: Atlanta, GA Occupation: Program Manager Project S.A.V.E of Children’s Healthcare of Atlanta, an affiliate of Project ADAM Why were you drawn to nursing as a career? I had a good friend who passed away. While he was...
by Alexis Holmgren | Jun 18, 2019 | Advocacy, ICD, LCSD, Long QT Syndrome, Managing Multiple Diagnoses, Online Patient Communities, SADS Spotlight
Name: Alexis Holmgren Age: 18 Which SADS condition do you have? Long QT Syndrome Type 5 When were you diagnosed? In 2013 at age 12 How are you treated? Beta blocker (Nadolol), Spironolactone, Left Cardiac Sympathetic Denervation (LCSD), and a dual chamber ICD with...
by Melissa Russom | Mar 1, 2019 | Advocacy, AEDs
Do you notice AEDs in your community? If you’re at work, out shopping, working out or participating in your everyday activities – could you find the AED immediately if someone were to need it? I’m the mom of two girls with Long QT and I wasn’t in the habit of...
