by Kennedy Cooper | Nov 8, 2018 | Advocacy, Grief and Loss, Sudden Cardiac Arrest
When you’re six years old, the world is your oyster and your imagination is taller than you are. Nothing bad could ever happen because the toxic realities of life far surpasses our level of comprehension at such a young age. I always found comfort in the...
by Ted Guloien | Jun 30, 2018 | Sudden Cardiac Arrest
So, you’ve had a sudden cardiac arrest. For you and many of us, this marks the beginning of long-term medical interventions and therapies designed to diagnose and treat the underlying cause or causes of this traumatic heart-stopping event. But while the family...
by Rachelle | Jun 15, 2018 | Connecting with others, CPVT, HCM, ICD, Long QT Syndrome, Research, Sports/Exercise, Sudden Cardiac Arrest, Timothy Syndrome, Uncategorized
Seeing the doctor is always stressful. It’s even more so when you’re from out of state (like me) or even out of country. It can be very overwhelming. I admin a group and we get a lot of questions from people asking what it’s like, where to stay,...
by Deb Thibodeau | Feb 14, 2018 | Advocacy, HCM, Long QT Syndrome, Parenting, Sudden Cardiac Arrest
My heart breaks every time that I hear of a child dying suddenly from an undetected heart condition. How does one recover from knowing that if a diagnosis was made, their child may be with them today? I don’t have that answer, but unbelievably found myself...
by Erin McGuire Clark | Jan 23, 2018 | ICD, Long QT Syndrome, Parenting, Sudden Cardiac Arrest
WHEN PIGS FLY As the loud telephone ring startles me from my sleep, I inexplicably collapse to the floor and am rushed to the hospital where my heart monitor repeatedly goes crazy with bouts of cardiac arrest as I am inappropriately treated for a gamut of suspected...
by Jasmine Wylie | Aug 29, 2017 | Connecting with others, Long QT Syndrome, Sudden Cardiac Arrest
Twinkle, twinkle little bat…… When I was first diagnosed with LQTS, my family found the stories on the C.A.R.E Foundation website. One in particular- “How to live to be 102 with Long QT”- made an impact on me and my family. Reading a story of...
