by Dawn Barnett | Feb 15, 2019 | Long QT Syndrome, SADS Spotlight
Name: Dawn BarnettAge: 71Which SADS condition do you have? Long Qt Syndrome 11When were you diagnosed? 2005How are you treated? beta blocker, ICD How/when were you diagnosed? 2005 after heart arrest and medically-induced coma for 7 days. Identical twin...
by Daiana | Feb 8, 2019 | Long QT Syndrome, SADS Spotlight
Name: Daiana Age: 21Which SADS Condition do you have? Long QT Syndrome When were you diagnosed? Age 17 How are you treated? Beta blockers How/when were you diagnosed? I was diagnosed when I was 17 years old. What has been the biggest...
by Stephanie Festian | Feb 5, 2019 | ICD, Long QT Syndrome, SADS Spotlight
Stephanie and her husband on a recent night out at the theater Name: Stephanie Swor Festian Age: 45 Which SADS condition do you have? Long Q-T Type 1 How are you treated? (Beta blocker, ICD, etc.) Beta blocked from 1992-2015, now beta plus ICD When were...
by Lauren Hannah | Jan 9, 2019 | Long QT Syndrome, SADS Spotlight
Lauren and Avery Hannah Ages: 38 and 7 Condition: Long QT Syndrome Type 1, I was diagnosed at 13, Avery was diagnosed at birth. Treatment: We are both treated with Nadolol. I was diagnosed by EKG after my brother had a fainting episode while playing basketball. I...
by Mary Hickey | Dec 4, 2018 | Conference, Long QT Syndrome, SADS Spotlight
Mama’s house is gone Fragments remain as part of That once vital family I am one of those fragments My name is Mary I have a story to tell Dirt road, uninsulated house, outhouse, wood stoves- one for heating, the other for cooking, water from a pump nearby. The...
