by Danielle Wright | Apr 20, 2020 | CPVT, ICD, Parenting, SADS Spotlight, Sudden Cardiac Arrest
Name: Danielle Age: 38 Which SADS condition do you have? CPVT When were you diagnosed? Oct 2017, after 20 + yrs of misdiagnosis How are you treated? (Beta blocker, ICD, etc.) ICD placed in November 2017, nadolol and flecanide How/when were you diagnosed? I had a...
by Kristin Ristine | Apr 20, 2020 | Genetic Testing, Long QT Syndrome, Parenting, SADS Spotlight
Kristin’s daughter the day she wore her first holter monitor. Name: Kristin Ristine Age: 34 Which SADS condition do you have? Long QT Syndrome Type 1 How are you treated? On beta blockers How/when were you diagnosed? My mom was diagnosed while at the hospital...
by Kerri Dyer | Apr 20, 2020 | ARVC, ICD, Parenting, SADS Spotlight
Name: Kerri Dyer Age: 38 years Which SADS condition do you have? ARVC When were you diagnosed? 2014 How are you treated? (Beta blocker, ICD, etc.) 2 different beta blockers and ICD fitted How/when were you diagnosed? Collapsed at home with pulse of 276 bpm,...
by Natalie Johnson | Apr 7, 2020 | ICD, Long QT Syndrome, Parenting, SADS Spotlight
Natalie in Maui on a snorkeling tour! Name: Natalie J Age: 27 Which SADS condition do you have? Long QT When were you diagnosed? August 2010 How are you treated? (Beta blocker, ICD, etc.) Beta blocker and ICD How/when were you diagnosed? I was diagnosed at 17...
by Bella Alvarez | Feb 18, 2020 | AEDs, CPVT, Genetic Testing, SADS Spotlight, Sports/Exercise
Bella getting ready to tumble with a heart monitor. GO BELLA! Name: Bella AlvarezAge: 11Which SADS condition do you have? CPVTWhen were you diagnosed? December 2018How are you treated? Beta Blocker (Metoprolol) How/when were you diagnosed? I was diagnosed through...
by Tisha | Jan 30, 2020 | Advocacy, Brugada Syndrome, Connecting with others, Heart Hero, ICD, Parenting, Rare Disease, SADS Spotlight, Sports/Exercise
Name: Tisha M. Age: 36 y/o Which SADS condition do you have? Brugada Syndrome When were you diagnosed? 12/27/19 How are you treated? (Beta blocker, ICD, etc.) ICD How/when were you diagnosed? I went to Urgent Care on 12/27/19 with complaints...
