SADS Channel | SADS Foundation Blog http://www.sads.org/blog Supporting Families. Saving Lives. Tue, 26 Apr 2022 22:25:09 +0000 en-US hourly 1 https://wordpress.org/?v=5.1.13 LIVE-LQTS http://www.sads.org/blog/2019/06/21/live-lqts/ http://www.sads.org/blog/2019/06/21/live-lqts/#respond Fri, 21 Jun 2019 23:49:32 +0000 http://www.sads.org/blog/?p=1046

Calling LIVE-LQTS Research Study Participants!

If you are enrolled in the LIVE-LQTS study, we would love to hear from you and thank you for participating.  SADS Foundation is creating a web page to recognize members involved in this three-year study.  We would love to have your name for the web page, your story, a blog, a photo, or anything you’d like to share with SADS.   Please send to SADS@SADS.org. 

]]> http://www.sads.org/blog/2019/06/21/live-lqts/feed/ 0 Heart Hero: Terry http://www.sads.org/blog/2019/02/26/heart-hero-terry/ http://www.sads.org/blog/2019/02/26/heart-hero-terry/#respond Tue, 26 Feb 2019 01:11:13 +0000 http://www.sads.org/blog/?p=906

Terry Bishop was nominated as a Heart Hero by his wife, Whitney. He lives with Brugada Syndrome.  Congratulations on being a Heart Hero, Terry!    

Terry has been so strong through this learning experience we have gone through. He is the carrier and 2 of our 5 children, both girls, have Brugada Syndrome. He has shown our girls that fear is okay but God and knowledge are so powerful! He is there every step of the way for our family. He continues to work his bottom off and strives to be an amazing husband and father all while dealing with a life changing heart condition. He continues to show love and support for our girls. He is definitely a hero to them. They know that they are NOT alone on this journey because together they share a bond that not one of us can compare to. He builds them up when they are scared and assured me daily he’s not going anywhere when I am scared!!! He is so stressed all the time and he never lets it show. He is my Heart Hero because he is the rock of this family!!!



Donate to SADS in honor of Terry, the #SADSHeartMonth Heart Hero!
https://www.sads.org/Donate

]]> http://www.sads.org/blog/2019/02/26/heart-hero-terry/feed/ 0 Shhhh…….Dr. Michael J. Ackerman Appreciation Fund http://www.sads.org/blog/2018/10/01/shhhh-dr-michael-j-ackerman-appreciation-fund/ http://www.sads.org/blog/2018/10/01/shhhh-dr-michael-j-ackerman-appreciation-fund/#respond Mon, 01 Oct 2018 23:51:12 +0000 http://www.sads.org/blog/?p=757

Say THANKS to Dr. Ackerman!
Support the life-saving services of the SADS Foundation!

We will be announcing this SURPRISE on October 27th at the 11th Annual International SADS Foundation Conference in Ann Arbor, Michigan. Join us in showing Dr. Ackerman our heartfelt gratitude for his distinguished services for families with SADS conditions. Your name will be listed as a donor for the conference presentation.

This special fund has been established to celebrate the more than 10 years that Dr. Ackerman has served as the President of the Board of Trustees for the SADS Foundation as well as the lifetime accomplishments of Dr. Ackerman and his limitless care for our SADS families.

From receiving the 25th Young Investigator Award – Society for Pediatric Research in 2007 to receiving the Distinguished Pediatric Investigator Award – Mayo Clinic and the Distinguished Scientist Award – Heart Rhythm Society in 2018, Dr. Ackerman has significantly advanced research within SADS conditions and improved the care of families with SADS conditions.

Contact Jan at 801-272-3023 or jan@sads.org for further details.

Contribute today!     

Read more about Dr. Ackerman’s achievements here.

]]> http://www.sads.org/blog/2018/10/01/shhhh-dr-michael-j-ackerman-appreciation-fund/feed/ 0 I Learned I Was Not Alone http://www.sads.org/blog/2017/07/24/i-learned-i-was-not-alone/ http://www.sads.org/blog/2017/07/24/i-learned-i-was-not-alone/#respond Mon, 24 Jul 2017 04:34:26 +0000 http://www.sads.org/blog/?p=404


As I sit here on train to Mineola Station I know one thing for sure: I am confident . Confident of the condition I was born with, the limits I posses, and the boundaries I can break.  Outside the window to my right passes scrawny trees and packed cities. This sight is nothing compared to Mount Rainier, WA, the first convention I attended. At that time i was anything but confident. It was a year after I learned of my condition and I was lost. Unlike some, I experienced an episode, and as a result I had to give up playing competitive sports. In other words I was very restricted.  That first convention I attended truly changed my life. I learned I was not alone. Which sounds silly when I type it out, but it was comforting to know that there are others out there who have my condition, and there are individuals out there striving for a change. At each conference I attended thereafter I learned how my condition differed from case to case, the different approach every individual doctor took with his/her patients, and how I did not have to be as restricted as I was at first. Most importantly I became confident, and this confidence could not have been achieved without the SADS Foundation, my family, and the individuals I met whose stories changed my life. If you’re thinking of going to the next convention don’t go because your parents are making you, but go to better understand the condition you possess, and to meet individuals who could change your life too.

-Annie

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