by Jasmine Wylie | Aug 29, 2017 | Connecting with others, Long QT Syndrome, Sudden Cardiac Arrest
Twinkle, twinkle little bat…… When I was first diagnosed with LQTS, my family found the stories on the C.A.R.E Foundation website. One in particular- “How to live to be 102 with Long QT”- made an impact on me and my family. Reading a story of...
by Jasmine Wylie | Jun 28, 2017 | Fundraising, Long QT Syndrome, Sudden Cardiac Arrest
This is Abrielle Watschke. In 2014, she survived an out of hospital sudden cardiac arrest. Today, she is thriving with Long QT Syndrome. Read the Watschke family’s story here. Donate to the 2017 No Ball at All Campaign in honor of this amazing...
by Jasmine Wylie | May 12, 2017 | Uncategorized
Are you a patient affected by a SADS Condition? Are you a parent or sibling or other family member of someone affected by a SADS condition? Are you a doctor, genetic counselor, researcher, or other professional who would like to help contribute to a resource for SADS...
by Jasmine Wylie | Jan 31, 2017 | Long QT Syndrome
Sometimes normal life involves taunting my dogs with donuts on a Sunday morning Sometimes normal life involves having coffee in a hospital after having an ICD pocket revision. I remember the day I got married. It was hot and the tulle of my dress was scratchy...
by Jasmine Wylie | Jan 19, 2017 | Uncategorized
Welcome to SADS Channel, the official blog of the SADS Foundation! SADS Channel is intended to be a place for sharing experiences, information, news, research opportunities, and other content related to SADS conditions such as LQTS, BrS, CPVT, and more. This blog was...
