Daiana | SADS Foundation Blog http://www.sads.org/blog Supporting Families. Saving Lives. Tue, 26 Apr 2022 22:25:09 +0000 en-US hourly 1 https://wordpress.org/?v=5.1.13 SCA Survivor: Daiana http://www.sads.org/blog/2020/10/07/sca-survivor-daiana/ http://www.sads.org/blog/2020/10/07/sca-survivor-daiana/#respond Wed, 07 Oct 2020 20:08:22 +0000 http://www.sads.org/blog/?p=1385

The first time I had my cardiac arrest was February 13th, 2016.   My cardiac arrest occurred when I was at baseball practice and I told my coach I did not feel right and was having a lot of pain.  I thought it was just muscle pain, but I ignored it and a few minutes later it came back.  My coach told me to sit down for a few minutes.  Then it was my turn to play baseball.   Then, all of a sudden, I collapsed on the baseball field and suffered a cardiac arrest. 

Because of the life-saving measures of my coach who did CPR on me and 911 emergency services, I survived!   My heart had stopped beating and I had no pulse.  They performed CPR on me until the ambulance came.  I was air lifted to the Children’s Hospital, Lucile Packard at Palo Alto Stanford.  I was in the intensive care unit for two months straight fighting for my life!  

Thanks to my coaches, I am alive today.   I had symptoms on the same day of the game and my cardiac arrest, but no symptoms the day before.   When I woke up, I was in the hospital.  Now, I see my cardiologist every two months for follow-up. 

Do you have an SCA survivor story? We’d love for you to share it with us! Just send a short video (1-3 minutes long) or a written story to SADSblog@SADS.org

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SADS Spotlight: Daiana http://www.sads.org/blog/2019/02/08/sads-spotlight-daiana/ http://www.sads.org/blog/2019/02/08/sads-spotlight-daiana/#respond Fri, 08 Feb 2019 22:57:01 +0000 http://www.sads.org/blog/?p=869

Name: Daiana
Age: 21
Which SADS Condition do you have? Long QT Syndrome
When were you diagnosed? Age 17
How are you treated? Beta blockers

How/when were you diagnosed?  I was diagnosed when I was 17 years old.  
What has been the biggest challenge you’ve faced in living with your diagnosis?  My biggest challenge has been too many hospitalizations. 
What is one positive thing that has come out of your diagnosis? I have learned to be strong and brave.  
What encouragement or advice would you give someone who has just been diagnosed with your condition?   The best advice I would give to people that are first diagnosed with Long QT Syndrome:  Always take your medication.  Never give up.   Be strong and courageous.  You can fight this battle.
What does your day-to-day life look like?  My day-to-day life looks normal, except for when I go to cardiology appointments every 6 months with my cardiologist in Modesto and at Stanford Hospital.  
What are your favorite hobbies and activities? My favorite hobbies are going to church and being an alter server , spending time with my friends, spending time with my grandma and grandpa, going out to lunch, playing soccer, snowboarding, running, working out, doing volunteer work at church,  listening to music, and reading my Bible.  

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