http://www.sads.org/blog/2017/05/15/one-long-qt-journey/ Supporting Families. Saving Lives. Mon, 12 Jul 2021 13:37:13 +0000 hourly 1 https://wordpress.org/?v=5.1.13 http://www.sads.org/blog/2017/05/15/one-long-qt-journey/#comment-156 Sat, 29 Jul 2017 12:03:23 +0000 http://www.sads.org/blog/?p=218#comment-156 Thank you for sharing. I’m learning that there are as many different stories as there are families with this condition. The hardest part of living with Long QT syndrome is knowing that there is a (strong?) possibility of a sudden cardiac arrest event at some point. Managing that, and living our lives to the full is the balance we strive for.

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